🇬🇧 ENGLISH VERSION (Complete)

Why in the News?

The Ministry of Health and Family Welfare inaugurated the National Conference on Rare Diseases in New Delhi on May 5–6, 2026 to strengthen early diagnosis and treatment frameworks for genetic disorders.

🔑 Key Highlights

1. Financial Assistance

• Treatment support increased to:
• ₹50 lakh per patient
• Policy benefit:
• Life-saving drugs exempted from basic customs duty

2. Healthcare Infrastructure

• Centres of Excellence (CoEs):
• Increased from 8 → 15
• Special focus:
• 2 new CoEs in North-East India

3. Initiatives & Management

UMMID Programme

• Full form:
• Unique Methods for Management of Inherited Disorders
• Provides:
• Genetic counseling
• Screening services

NIDAN Kendras

• Function:
• Early diagnosis of genetic diseases

4. Affordable Treatment Efforts

• Indian Council of Medical Research (ICMR):
• Identified 6 repurposed drugs
• Objective:
• Reduce treatment cost

5. Research & Innovation

Collaboration with:

• Department of Biotechnology (DBT)
• Council of Scientific and Industrial Research (CSIR)

Advanced Technologies:

• Gene Therapy
• CAR-T Cell Therapy

ℹ️ Additional Information

National Policy for Rare Diseases (2021)

• Classifies diseases into:
• 3 categories
• Focus:
• Cost-based treatment approach
• Preventive strategies:
• Genetic screening
• Antenatal testing

Rare Diseases Profile

• Mostly:
• Genetic disorders
• Key fact:
• ~50% cases occur in children globally

Indian Council of Medical Research (ICMR)

• Apex biomedical research body
• Established:
• 1911 (as IRFA)
• Renamed:
• 1949
• Headquarters:
• New Delhi

🇮🇳 हिंदी संस्करण (पूर्ण)

समाचार में क्यों?

Ministry of Health and Family Welfare ने 5–6 मई 2026 को नई दिल्ली में National Rare Diseases Conference आयोजित किया।

🔑 मुख्य बिंदु

1. वित्तीय सहायता

• सहायता बढ़ाकर:
• ₹50 लाख प्रति मरीज
• दवाओं पर:
• कस्टम ड्यूटी समाप्त

2. स्वास्थ्य ढांचा

• Centres of Excellence:
• 8 से बढ़कर 15
• उत्तर-पूर्व में:
• 2 नए केंद्र

3. मुख्य पहल

UMMID योजना

• जेनेटिक काउंसलिंग
• स्क्रीनिंग सेवाएँ

NIDAN केंद्र

• रोगों की प्रारंभिक पहचान

4. सस्ती चिकित्सा

• Indian Council of Medical Research द्वारा:
• 6 दवाओं की पहचान

5. अनुसंधान

• DBT और CSIR के साथ सहयोग

तकनीक:

• Gene Therapy
• CAR-T Therapy

ℹ️ अतिरिक्त जानकारी

National Policy for Rare Diseases 2021

• 3 श्रेणियाँ
• जेनेटिक परीक्षण पर जोर

Rare Diseases

• ज्यादातर:
• आनुवंशिक रोग
• 50% मामले:
• बच्चों में

Indian Council of Medical Research

• स्थापना:
• 1911
• मुख्यालय:
• नई दिल्ली

🧠 BILINGUAL MCQs (Exam Ready)

Q1. Financial assistance for rare disease patients has been increased to?

Rare disease मरीजों के लिए सहायता कितनी बढ़ाई गई?

A. ₹20 lakh

B. ₹30 lakh

C. ₹50 lakh / ₹50 लाख ✅

D. ₹1 crore

Q2. Number of Centres of Excellence increased to?

CoEs की संख्या कितनी हो गई?

A. 10

B. 12

C. 15 / 15 ✅

D. 20

Q3. UMMID programme is related to?

UMMID योजना किससे संबंधित है?

A. Vaccination

B. Nutrition

C. Genetic disorders / आनुवंशिक रोग ✅

D. Surgery

Q4. ICMR identified how many repurposed drugs?

ICMR ने कितनी दवाओं की पहचान की?

A. 4

B. 5

C. 6 / 6 ✅

D. 8

Q5. Rare Diseases Policy was launched in which year?

Rare Diseases Policy कब शुरू हुई?

A. 2018

B. 2019

C. 2020

D. 2021 / 2021 ✅

Q6. CAR-T therapy is related to?

CAR-T therapy किससे संबंधित है?

A. Agriculture

B. Cancer treatment / कैंसर उपचार ✅

C. Vaccination

D. Nutrition

Q7. ICMR headquarters is located in?

ICMR का मुख्यालय कहाँ है?

A. Mumbai

B. Chennai

C. New Delhi / नई दिल्ली ✅

D. Kolkata

Q8. Rare diseases mainly affect which group?

Rare diseases मुख्य रूप से किसे प्रभावित करते हैं?

A. Adults

B. Elderly

C. Children / बच्चे ✅

D. Women only

Test yourself with our Quiz